Noah VanHoutan

The VanHoutan family started Noah's Hope, a charity to raise money for research into Batten Disease, after their son Noah and daughter Laine were diagnosed with the rare, fatal brain disease. (Family Photo)

Family Helping Fund Research For Rare Disease That Struck Son, Daughter

They start out growing up like any other child, until a seizure strikes. It’s the first sign of a deadly, rare brain disease that robs children of their abilities before taking their lives. This weekend, you can help a Downers Grove family try to find a cure for Batten Disease.

CBS 2–05/17/2013