Amid Tragic Loss, A Family Fights For Cure For Rare DiseaseNoah VanHoutan died in March, not yet 12 years old, of Batten disease, a rare genetic degenerative neurological disorder.
Family Helping Fund Research For Rare Disease That Struck Son, DaughterThey start out growing up like any other child, until a seizure strikes. It's the first sign of a deadly, rare brain disease that robs children of their abilities before taking their lives. This weekend, you can help a Downers Grove family try to find a cure for Batten Disease.

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